Drugs

There are a few different drugs used to treat sarcoidosis, which often work by reducing symptoms.

Sometimes sarcoidosis medicines treat a single body part, such as eyedrops or skin creams. Other medicines treat the whole body from the inside and can be particularly useful for treatment of the lungs, brain and heart.

These include:

  • Prednisolone and prednisone (steroids) - these are the most commonly drugs used for sarcoidosis.
  • Methotrexate and azathioprine are often used to help people come off prednisolone (this is known as steroid sparing).
  • Infliximab and similar drugs can sometimes work when prednisolone or steroid sparing drugs do not work.

Outlook

The majority of people diagnosed with sarcoidosis get better without specific treatment within 12-18 months and lead perfectly normal lives. This is because the body’s immune system heals the granulomas over this time.

Sometimes, for reasons that are not understood, this healing does not happen and scar tissue forms (fibrosis). This can result in permanent damage.

Sarcoidosis clinics

The World Association for Sarcoidosis and Other Granulomatous Disorders (WASOG) focuses on interstitial lung diseases (ILD) including sarcoidosis and recommends a multidisciplinary approach to the management of these conditions.

A multidisciplinary approach is recommended for people with sarcoidosis

WASOG and the Foundation for Sarcoidosis Research (FSR) have developed a process whereby clinics can apply to be certified as WASOG Centers and Centers of Excellence.

‘WASOG Sarcoidosis Center of Excellence’ refers to a multidisciplinary team of specialised medical and paramedical professionals with a shared specialised facility that has proven sustainability over years, and provides leadership, best practices, research, support and/or training for sarcoidosis patients and professionals. It should contain sarcoidosis experts in at least two different disciplines.

To find out more about certified centres visit the Foundation for Sarcoidosis Research’s website or contact sarc.clinic@stopsarcoidosis.org.

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