Have your say on the future of rare disease

Please complete the Rare Barometer survey on the future of rare diseases – available in 23 languages.

Get involved in a new group to help improve diagnosis, treatment and care for COVID-19

We are looking for people from across Europe to join our new Patient Advisory Group to work with several research projects in this vital area.

COVID-19 your questions answered

ELF consults with infectious diseases experts from the European Respiratory Society to answer your questions​

Flying with medical oxygen? Use the newly updated ELF airline index before booking

The Index records policies and contact details of 152 airlines that fly to European destinations

LAM Academy Sweden to host information day

10-11 May at Karolinska Hospital, Stockholm, Sweden

Vitamin D binding protein (VTDB) is associated with the level of severity and survival in LAM, according to new research

Access the full article and editorial published in the European Respiratory Journal

LAM factsheet now available in Dutch

Our factsheet was developed with the help of LAM healthcare experts and women diagnosed with LAM

Study shows that rapamycin reduces lung function loss in LAM

UK study shows relationship between rapamycin levels, lung function response and side effects in a group of women with LAM

Clinical guidelines published by the American Thoracic Society and the Japanese Respiratory Society

Publication of 2017 clinical guidelines on the diagnosis and management of lymphangioleiomyomatosis (LAM)

New insights into LAM and PLCH (pulmonary Langerhans cell histiocytosis)

These distinctive diseases also share several features - this review highlights promising approaches