What we did

The following activities helped us to identify what matters most to patients and caregivers in LAM treatment and care.

Patient advisory group members

European Respiratory Foundation

This project was funded by ERS

The European Respiratory Society (ERS) is an international organisation that brings together physicians, healthcare professionals, scientists and other experts working in respiratory medicine.

ERS is one of the leading medical organisations in the respiratory field, with a growing membership representing over 140 countries worldwide.

Their mission is to promote lung health in order to alleviate suffering from disease and drive for respiratory medicine globally.


European Lung Foundation

This project was managed by ELF

The European Lung Foundation was founded by the European Respiratory Society in 2000.

ELF brings together patients and the public with respiratory professionals to positively influence lung health.

The ELF website provides a wealth of useful resources to share the latest developments in lung health research from ERS and its members. ELF also works to ensure that people with lung diseases and the general public have the opportunity to influence respiratory research and guidelines at a European level.

ELF’s key role can be seen as being the public voice of the ERS and the public’s voice in the ERS.